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Tell us your story. A new advocacy project from ICPCN

Calling all children, parents and carers. Do you have a palliative care story to tell? If so, we want to hear from you. In 2011, ICPCN published Touching Rainbows, a book that gave a voice to children with life limiting conditions from around the world by allowing them, and those who cared for them, to tell their …continue reading »

The most surprising thing about children’s palliative care

Joseph’s story was recently released by Moonshine Movies as part of their Indiegogo campaign. In this short film, Joseph’s mother describes her initial shock at being referred to a children’s hospice until she realised that palliative care is far more than end of life care. “The most surprising thing I have learnt about paediatric palliative …continue reading »

Top award for Prof Julia Downing at Panama conference

On Wednesday 10 September 2014, in Panama City, Professor Julia Downing was awarded the Robert Tiffany Nursing Lectureship which honours those within cancer nursing who have made a significant contribution to cancer practice, education, research or management at a national, regional and/or international level. Commenting on how she felt about being chosen as the recipient …continue reading »

Marmaduke’s Story

Watch the unreleased short film “Marmaduke’s Story” about childhood cancer and palliative care in Australia from the Little Stars series. “When you realise how uncertain life is you do begin to appreciate the value of family and friendships and enjoy those moments while you have then because you don’t know what’s around the corner.” These …continue reading »

Healing hearts and sending joy across the sky

  Music was in the air in a unique collaboration between a reformatory for women in Ohio, USA and a children’s hospice in Bloemfontein, South Africa. The beautiful voices of the woman’s choir brought joy to the children as they watched and listened via Skype. Yesterday, 22 August 2014, was a memorable day for 100 …continue reading »