Latest News

Children’s palliative care takes root in Bangladesh

Dr Megan Doherty, a paediatric palliative care physician living and working in Dakha, Bangladesh, writes about both the encouraging developments and barriers to accessing palliative care for children in that country. Imagine treating pain in children with advanced cancer using only paracetamol? This was the situation when I first started working on the children’s cancer …continue reading »

Latest Paediatrics and Child Health Journal focuses on palliative care

The latest themed issue of the Canadian Paediatrics and Child Health (April 2015, Volume 20 Issue 3: 123-124) has a strong focus on paediatric palliative care. In his editorial, Dr Stephen Liben motivates all those working in paediatrics to increase their knowledge of paediatric palliative care. He says, “Although paediatric mortality rates have decreased significantly over …continue reading »

Anastassia’s story – hope and Hyperinsulinism

A new Little Stars film out of Russia tells the story of Anastassia who was diagnosed with Hyperinsulinism when she was only two weeks old. It looks at how the palliative care team from the Russian Children’s Palliative Care Foundation support Anastassia and her family. In this latest Little Stars film we meet Anastassia Krupenrova, …continue reading »

Rare Disease Day – 28 Feb 2015

28 February 2015 is Rare Disease Day. The theme for this year is: Living with a rare disease A rare disease, also referred to as an orphan disease, is a life-threatening or chronically debilitating disease that affects a small percentage of the population. As a group, rare diseases are not uncommon however at least 75 per …continue reading »