8th International Cardiff Conference on Paediatric Palliative Care

The 8th International Cardiff Conference on Paediatric Palliative Care will take place from 26 – 28 July 2017 at Cardiff University, Wales, UK.

“Worlds apart: culture and context in caring for the whole child”

Letter from the chairs

We seem to have set ourselves an impossible task.  The claim of children’s palliative care is that we will care for the child ‘holistically’.  If we took that literally, there would never be time to care for more than one child at a time, even if we set aside the need for us as carers to lead our own lives.

In practice, when we talk about holism we mean many different things. The idea of ‘holistic’ care is an acknowledgement that the child’s existence is complex; that it is more than the physical and includes the spiritual and psychosocial, and that the child’s illness is not separable from the child him- or herself.  It expresses a commitment that in palliative care we are going to try and remember all these dimensions when it comes to caring for each individual child and family. Because if we are committed to an idea of holism, we are also committed to an idea of compassion that requires us to consider each child as though in that moment she were the only child.

But holism also represents a recognition that a child exists in, and is dependent on, a network of people that includes parents, siblings, grandparents and so on in ever-increasing circles that extend to include society as a whole. Society is people who have never met the child, but who we consider to have some role and responsibility in caring for her through their attitudes and the policies they support or enact.  A society’s culture – the way it thinks about children in general and dying in general – therefore has a profound impact on the way we can care for each child and family. The more we try to consider the child’s needs multi-dimensionally, outside the traditional medical model, the more relevant culture and society become.  Paradoxically, the more we expect a similar standard of care in all cultures, the more important it becomes to recognise how distinct those cultures can be.

This year we will consider the challenge of providing the same standard of care for children and their families in countries across the world, in the face of cultural contexts that can be vastly different in the way they understand medicine, dying, palliative care, ideas of family – and even the way they think of and value children themselves.  The theme of the 2017 Cardiff Conference on Paediatric Palliative Care will be Worlds apart: culture and context in caring for the whole child.

Dr Richard Hain
Prof Daniel Kelly
Prof Julia Downing


Conference Chairs

richard-hainDr Richard Hain
Lead Clinician,
Welsh Managed Clinical Network for Paediatric Palliative Medicine Children’s Hospital for Wales

 

 

daniel_kelly_photo_resized     Professor Daniel Kelly
     Director of Research and Innovation School of Healthcare Sciences
     Cardiff University

 

 

 

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Professor Julia Downing
Chief Executive of the ICPCN 


Keynote Speakers

Dr Ann Goldman

Ann Goldman is a paediatrician, now retired. Her background is in paediatric oncology.  In 1986 she established the Symptom Care Team at Great Ormond Street Children’s Hospital, which was the first multidisciplinary paediatric palliative care team. She was the first medical consultant in paediatric palliative care. In 1994 the team won the UK Hospital Doctor Award for Innovative Team of the Year.

She has worked in clinical care for the children and their families, research, teaching and has been involved in the development of palliative care services for children nationally and internationally. In 2004 she was awarded The Children’s Hospice International Outstanding Leadership award and in 2014 the Vittorio Ventafridda  Award for overall contribution to Palliative Care for Children.  She has written a variety of research articles, chapters and books and is an editor of the Oxford Textbook of Palliative Care for Children.  She is a vice president of  ‘Together for Short Lives’

 

 

Dr Michelle Meiring
Paediatric Palliative Care Paediatrician, Red Cross Memorial Children’s Hospital
Founding Director, Paedspal

Chair, PatchSA

Dr Meiring is a Paediatrician with a special interest in Palliative Care and Chronic Pain Management. She is the Founding Director of Paedspal, an NGO that provides a paediatric palliative care service to public and private patients in Cape Town. Academically she convenes the Post-Graduate Diploma in Paediatric Palliative Medicine at UCT. An active advocate, Dr Meiring chairs PatchSA (the South African Children’s Palliative Care Network) and is engaged in policy making nationally.

 

 

 

Dr Adam Rapoport, MD, FRCPC, MHSc
Medical Director, Emily’s House Children’s Hospice
Assistant Professor, Departments of Paediatrics and Family & Community Medicine, University of Toronto

Adam Rapoport is a general pediatrician with a Masters in bioethics. In 2009, Adam joined the Temmy Latner Centre for Palliative Care at Mount Sinai Hospital as their pediatric consultant. In July 2011 he became the first Medical Director of the Paediatric Advanced Care Team (PACT), the palliative care service at SickKids. PACT provides both inpatient and outpatient palliative care to children with life-threatening illnesses, and their families, including grief and bereavement support. In 2013 Adam became Medical Director at Toronto’s first pediatric residential hospice – Emily’s House. Adam’s academic work focuses on the intersection of his 3 primary interests: pediatrics, palliative care and ethics.


Conference dates

The conference will commence on Wednesday 26 July and end Friday 28 July 2017.


Abstract Submission

Abstract submission is now closed. 

Note: Abstracts may appear in black and white in the book of abstracts. Enquiries regarding abstract content to Richard Hain via email hidden; JavaScript is required


Conference Registration Policy

Contributions must be presented by one of the authors, or, if none of the authors are able to attend the presentation can be made by a qualified substitute. All contributors will be required to register and pay in full.

Registration Fees 

CONFERENCE FEES – Early Bird registration before 4 June 2017

Please note that the conference dinner is an optional selection and not included in any registration fee.

Full Conference Fee Full 3 days                                    * £289.00
Day Conference Fee Wednesday 26th July 2017         £232.00
Day Conference Fee Thursday 27th July 2017             £232.00
Day Conference Fee Friday 28th July 2017                   £212.00
Evening Reception Fee Wednesday 26th July 2017    £19.00 (not included in the day fees)
Conference Dinner Thursday 27th July 2017                £42.00 (not included in any fees)


CONFERENCE FEES – From 5 June 2017 to 14 July 2017

Please note that the conference dinner is an optional selection and not included in any registration fee.

Full Conference Fee Full 3 days                                      * £310.00
Day Conference Fee Wednesday 26th July 2017           £235.00
Day Conference Fee Thursday 27th July 2017               £235.00
Day Conference Fee Friday 28th July 2017                     £215.00
Evening Reception Fee Wednesday 26th July 2017      £21.00 (not included in the day fees)
Conference Dinner Thursday 27th July 2017                  £47.00 (not included in any fees)

* This includes the reception on Wednesday 26th July 2017

The deadline date for booking is 14th July 2017.

On-line booking is now live at the link below, but if you would rather book using a form and/or invoice, they are available.  For this or any other enquiry, just email us at email hidden; JavaScript is required

REGISTRATION IS NOW OPEN

Please click on this external link to register and to book your accommodation: https://www.conferences.cardiff.ac.uk/ppc2017

RCPCH CPD approval applied for.


Conference Venue

Cardiff University

Cardiff University

The conference venue will be Cardiff University Main Building (No 39 on the location guide). There will be a marquee on the lawns at the front of the Main Building at the Museum Avenue entrance. The marquee will house the lunches, refreshments, posters and registration.

 

 

 

Download the Location Guide: Location Guide for Cardiff University


Accommodation 

Accommodation is available at Colum Hall on the Cardiff University Campus and should be booked well in advance to ensure availability. Please book your accommodation when you register. (You will find the link on the registration page.)


More information

Travel to Cardiff
About Cardiff


Organising Committee

Dr Richard Hain
Lead Clinician,
Welsh Managed Clinical Network for Paediatric Palliative Medicine Children’s Hospital for Wales Cardiff, CF14 4XN
Tel: +44 (0)29 2074 3373
Email: email hidden; JavaScript is required

Professor Daniel Kelly
Royal College of Nursing Chair of Nursing Research /
Director of Research and Innovation
School of Healthcare Sciences
Cardiff University
Eastgate House,
Newport Road
Cardiff CF24 0AB
Tel: +44 (0)29 2091 7753
Email: email hidden; JavaScript is required

Professor Julia Downing
International Children’s Paediatric Care Network (ICPCN)
Chief Executive of the ICPCN
ICPCN is a registered charity in England and Wales and operates out of South Africa and the UK. Cluster Box 3050, Assagay, 3624,
South Africa
Tel: +27 (0)82296 4367
Email: email hidden; JavaScript is required
Web: www.icpcn.org


 Partners of PPC2017 

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The International Children’s Palliative Care Network (ICPCN) is a “one-stop” international resource providing information about paediatric palliative care services for professionals, caregivers and families. It raises awareness of the worldwide need for children’s palliative care services, promotes research to support and underpin its information and policy work, provides free online education, undertakes face to face training and generally raises the profile of children’s palliative care through focused advocacy The ICPCN is the only international charity advocating on a global scale for the rights of babies, children, young adults with life limiting conditions and their families to receive palliative care.  


Conference Management

Leanne Munkley
Conference Officer,
Campus Services Division Cardiff University Conference Office
PO Box 533 Cardiff CF14 3XZ
Tel: +44 (0)29 2087 6365
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