Family Resources

Support for the Family Living with a Seriously Ill Child
Author:  Dr Jan Aldridge
Ill childPublisher: Sheldon PressISBN:  978-0-85969-947-1A compelling book for those parents who find themselves leading a life vastly different from the one they envisaged.  It also makes illuminating reading for those closest to them and for those whose professional lives bring them into contact with parents of seriously ill children.Dr Jan Aldridge is a clinical psychologist who has worked extensively with children, young people and families. Her experience also includes lecturing, research and professional training in the UK, Australia, Bangladesh and the United States.  In addition she has been involved in pioneering work in the development of child oriented initiatives at the interface of phsychology and the legal system.Currently Jan holds the post of consultant Clinical Psychologist at Martin House Children’s Hospice and an Honorary Senior Lectureship in the Medical School at the University of Leeds.  She has published widely in academia and is a regular resource for both television and print media in the areas of children and families under stress.All royalties from the book will go to Martin House Children’s Hospice
To order the book go to: http://www.amazon.co.uk/Living-Seriously-Ill-Child-Aldridge/dp/0859699471


No Secrets
No secrets 1The booklet is based on a study conducted by Dr Mary Bunn at Umodzi in Malawi, which aimed to investigate attitudes towards talking to children about life-limiting illness.  It summarises the findings of both international research and Dr Bunn’s research in Malawi and provides a brief guide for healthcare workers who want to encourage families/carers to talk to their children. This illustrated guide includes tips on: encouraging healthcare teams to support the principle that children should be told about their own conditionpractical ways healthcare staff can support families/carerswhere, how and how much families/carers should tell a child. The booklet is mainly aimed at healthcare professionals in Malawi but also has some more general use. Printed copies of the book are available from the African Palliative Care Association. Please contact email hidden; JavaScript is required
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A Gift of Time – Continuing Your Pregnancy When Your Baby’s Life Is Expected to Be Brief
Authors: Amy Kuebelbeck and Deborah L. Davis, Ph.D.
Published by Johns Hopkins University Press

TimeA Gift of Time is a gentle and practical guide for parents who are (or are considering) continuing their pregnancy knowing that their baby’s life will be brief. When prenatal testing reveals that an unborn child is expected to die before or shortly after birth, some parents will choose to proceed with the pregnancy and to welcome their child into the world. With compassion and support, A Gift of Time walks them step-by-step through this challenging and emotional experience—from the infant’s life-limiting prenatal diagnosis and the decision to have the baby to coping with the pregnancy and making plans for the baby’s birth and death. Order the book


 

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