Presentations from 1st ICPCN Conference

The ICPCN is pleased to announce the success of its very first conference, held in partnership with Tata Memorial Hospital, that took place in India from 10 – 12 February 2014. The theme of the conference was Transforming Children’s Palliative Care – from ideas to action. This conference brought together palliative care professionals from around the globe to share their ideas, research and innovations.

Transforming children’s palliative care – from ideas to action

Conference logo 2


Download a copy of the final programme:

Programme for ICPCN 2014 Conference

Download a copy of the Abstract Book:

ICPCN India Conference 2014 – Abstract Book

Plenary Speakers
ICPCN was honoured to have secured the following highly esteemed plenary speakers for our very first conference. Click here to read more about our speakers.

  • Sister Frances Dominica 
  • Dr John Collins
  • Prof Mary Ann Muckaden
  • Dr Stephen Liben
  • Prof Myra Bluebond Langner
  • Dr James Cleary
  • Dr Richard Hain
  • Dr Rut Kiman

Some of the plenary speakers and presenters have generously offered to share their presentations with our members. These are available for download below and we asked that they be used for reference purposes only. The information in these presentations remain the intellectual property of the speakers. Photographs of children should not be used without the relevant permission.


Plenary presentations
Transforming Education in CPC – Dr John Collins
Mindfulness and Care for the Caregiver – Dr Stephen Liben
Ethics in CPC – Prof Muckaden
From vision to action – Sr Frances
Neonatal Palliative Care – Dr Rut Kiman

Oral presentations
Addressing Professional QOL – Mekel Harris
Care journeys and pathway approaches – Katrina McNamara
Children’s palliative care in the UK context opportunities debates and dilemmas – Barbara Gelb
CPC in Western Kenya – Pamela Were
Communication a Practical Approach – Anthony Herbert
Defining quality of life in PPC patients – Erin Gaab
Different models of short breaks – Anna Garchokova
Emerging Ethical Debates Involving the Workforce – Katrina McNamara
For the child to hear – Developmental Considerations in palliative care – Kavita Desai
For the child to hear – Developmental Considerations in Palliative Care – Kavita Desai – Handout
How Can We Improve Pain Control in Children Over the World – Dr Savva
Hummingbird House A collaborative international hospice model – Paul Quilliam
Hypnosis for pain and palliative care – Dr Chantal Wood
Leadership Team STEPPS Presentation – Caprice Knapp
Management of Respiratory Distress – Anthony Herbert
Management Model – Caprice Knapp
Martha Lost everything – Hanneke Brits
Neonatal palliative care – Katrina McNamara
Outcomes of children with advanced HIV disease initiated on Anti-retroviral therapy in a Paediatric
Palliative Care and Traditional Healers – Zodwa Sithole
Palliative Care programme – Hanneke Brits
PPC in Bangladesh Dr Zohora Jameela
Resuscitation Planning – Anthony Herbert
Review of Physiotherapy Needs for Paediatric Palliative Children in Kuwait -Vijayalakshmi Balraj
Square Table Programme An engagement tool for CPC – Barbara Gelb
Supporting primary care teams in delivering EOL care at home – Veronica Neefjes [Compatibility Mode]
The development of Paediatric Palliative Care in Norway – Natasha Pedersen
The need for advocacy in paediatric palliative care – Busi Nkosi
The sexuality of young(er) adults with life limiting conditions in the UK – Maddie Blackburn|
Transition Taskforce Presentation fo – Lizzie Chambers
Valuing intergenerational diversity in the workplace – Andre Wagner
We are proving an excellent service, but is that enough to sustain us – Andre Wagner
What can the assessment of an interdisciplinary course in PPC tell us – M. Friedel


Photographs from the conference


An album of photographs from the conference can be viewed on our Facebook page.

The ICPCN Mumbai Declaration 2014

At the end of the conference, the ICPCN Mumbai Declaration 2014 was drawn up in response to the recent ruling of the Belgian Parliament to remove the age restriction on access to euthanasia. This declaration was signed by individuals and organisations at the conference. It reads as follows:

We believe that all children (neonates, children and young people) have the right to the best quality of life. When they have life-limiting conditions they have the right to high quality palliative care to meet their needs.

We believe that euthanasia is not part of children’s palliative care and is not an alternative to palliative care. It is imperative that we work together to improve access to children’s palliative care around the world, including ensuring access to appropriate pain and symptom control. 

We call on all governments to transform children’s lives through the development of children’s palliative care, and in particular we urge the Belgian government to reconsider their recent decision to allow euthanasia of children.

 This includes:

  1. Access to children’s palliative care within the children’s health care system
  2. Access to appropriate pain and symptom management (including medications) for all children
  3. Supporting children and their families to be able to live their lives to the best of their ability for as long as possible.

Download a copy of the Declaration.

ICPCN Declaration of Mumbai 2014

 Sign the declaration here


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