There is a growing global community of people working in the sphere of children’s hospice and palliative care providing countless opportunities for practitioners to reach out and make contact with one another.
The ICPCN Guide to Children’s Hospice & Palliative Care Partnerships was born from a desire to help and encourage ICPCN members and member hospices to transform the words and desires behind the ICPCN Declaration of Cape Town into actions.
The Declaration reads as follows:
Palliative care for children is a basic human right.
We believe that all children with life-threatening and life limiting conditions have the right to quality palliative care provided by trained health care practitioners. Holistic family-centred children’s palliative care encompasses individualised assessment, pain and symptom management, psychosocial, spiritual and bereavement support.
As a community of palliative care practitioners we recognise that disparities exist within and between countries and services but collectively we are a rich resource of knowledge, skill and judgement and we commit to share all that we can to achieve this joint vision. We commit both individually and collectively to identify opportunities for collaboration.
Partnerships need not be onerous nor about one hospice providing financial support to another. While not to be entered into without due consideration of all the implications, a partnership between two hospices has the potential to bring inspiration, empowerment and renewed energy into the work and experiences of both partners.
The ICPCN would like to encourage links not only between hospice, but also between people working in similar fields around the globe. With the advances in technology and the ease of communication via text messages, email and Skype, this has never been easier to accomplish.
The ICPCN Guide to Children’s Hospice & Palliative Care Partnerships contains an inspirational foreword by Dr Justin Amery, a background and history to the ICPCN and hospice partnerships, step by step guidelines for the implementation of successful partnerships, examples of existing partnerships and useful information on global contacts and resources.
It is hoped that this guide will inspire our members to reach out to their counterparts around the globe to learn from one another and to bring us closer to our vision of a world where “Quality palliative care for all children with life-limiting and life-threatening illnesses, their carers and families” is a reality.
In order to enable our members as far as possible to achieve this goal, this guide can be downloaded free along with a registration form to participate in this initiative.
PLEASE NOTE – PARTNERSHIPS WILL ONLY BE FACILITATED BETWEEN:
- ICPCN MEMBER HOSPICES/ORGANISATIONS
- ORGANISATIONS WHOSE MAIN PURPOSE IS THE PROVISION OF PALLIATIVE CARE TO CHILDREN OR TO ADULTS AND CHILDREN
- ORGANISATIONS THAT ARE REGISTERED AS A CHARITY WITHIN THEIR OWN COUNTRY
- ORGANISATIONS THAT HAVE BEEN IN EXISTENCE FOR MORE THAN 3 YEARS
Once submitted, the ICPCN will keep a register of all the information and endeavour to match suitable partners. We will also advertise hospices looking for partners on the website and in the Newsletter.
Registration forms can be submitted via email or post to:
ICPCN Information Officer
Post: P.O. Box 38785, Pinelands, 7405, South Africa
Note: PLEASE SEND PROOF OF YOUR ORGANISATION’S OFFICIAL STATUS ALONG WITH THE FORM.