More Useful Resources

The ICPCN is committed to providing information on available resources related to the field of children’s hospice and palliative care.

If you have a relevant resource you would like to see advertised on this website, please send an email with information to email hidden; JavaScript is required

Textbooks and Reference Books

Click here to access information on a wide selection of the latest Textbooks and Reference books for paediatric palliative care practitioners.

Fact Books
FAct Book

Click here to download or order Fact Books on palliative care for children and young people available in English and Spanish.

Clinical Care Resources 1

Click here to download a selection of resources for clinicians with a formulary available in English and in Russian.

Standards and Guidelines

Ruby and mom - rare diseasesClick here to find links to document downloads and website resources.


The WHO Guidelines on Persisting Pain in Children

The WHO guidelines on the pharmacological treatment of persisting pain in children with medical illnesses address the pharmacological treatment of persisting pain, including cancer pain. The new guidelines on Persisting pain in children are the first of a series of three guidelines documents on all types of pain in both adults and children. Click here to read more and to download.

Resources from Together for Short Lives

Together for Short Lives is the leading UK charity for children with life limiting and life threatening conditions. Their award winning website is a repository for a wealth of resources and free downloads for professionals as well as families. Click here to find out what is available.

Resources for Families

Families are acknowledged as a vital part of the team providing care to the child in need of palliative care. Click here to access information on a selection of resources for families where a child has a life limiting or life threatening illness.

Resources to help children

A selection of booklets and other resources that are specifically designed to help children with life threatening or life limiting conditions. Click here to access the information.

Resources for End of Life Care and Planning

Very specialised care and planning is needed to ensure the end of a child’s life is as pain free as possible and any concerns and fears of the child and family are addressed. Click here to find a wide selection of resources that will help families and practitioners cope with this difficult event.

Resources in different languages


We are encouraged at the a growing number of resources on children’s palliative care available in languages other than English. Please click on the links below to access some of those that are now available.

The ICPCN Charter (25 languages)
Russian presentations on Children’s Palliative Care
Portuguese Blog focusing on Children’s Palliative Care
Spanish resources


Share Button