Resources from Together for Short Lives

The following titles are available to order from the Together for Short Lives website

Click here to read more and order any of the titles below

A Guide to the Development of Children’s Palliative Care Services  This is a key resource for all organisations and professionals who have an interest in developing or supporting services for life-limited or life-threatening children and their families. It sets out ACT’s vision for the future sustainable development of children’s palliative care, ensuring that the best quality care and support is available to all the children, young people and families that need it.


A Neonatal Pathway for Babies with Palliative Care Needs
ACT’s Neonatal Pathway for Babies with Palliative Care Needs, encourages professionals who care for neonates, including paediatricians, obstetricians, nurses and midwives, to support parents to explore choices in their baby’s place of care whenever possible, and to help families to have the best possible experience and memory of their baby, no matter how short their life may be.


Right People, Right Place, Right Time  ACT and Children’s Hospices UK have produced a new guide to help their member organisations develop their workforce across universal, core and specialist services and a complex mix of service provision. Right People, Right Place, Right Time aims to support networks, service and workforce development commissioners, providers of children’s palliative care, Children and Young People’s Partnerships, the recruitment and retention of staff, education providers and individuals considering lifelong learning, professional development and career pathways in the children’s palliative care sector.


A Family Companion to the Together for Short Lives Care Pathway This invaluable family companion is designed especially for parents and family members of children and young people that have been diagnosed with life-limiting or life threatening conditions. At a time when things can seem overwhelming, this companion acts as a step by step guide through the complex and often confusing processes that take place following diagnosis.


The Transition Care Pathway
The Transition Care Pathway provides an easy to use, clear framework to help young people, families and professionals adjust to, prepare for and move-on to adult services. It emphasises the importance of empowering young people to take control of their lives, and calls for an early collaboration of paediatric and adult services to improve transition.


The Rainbow Guidelines
These are the latest Rainbow guidelines for symptom control in Children’s Palliative Care – 2010 edition. These guidelines have universal relevance, although not all the medications are available in parts of the developing world. They replace the 2008 Guidelines.


The whole picture: exploring disability and sexuality
A new DVD training resource designed to support all professionals who care for young people with palliative care needs or disabled young people. The resource takes the viewer on an honest and candid journey as young people and carers talk about the complex topic of sexuality and disability.


End of Life Planning Series
The End of Life Planning Series centres around A Guide to End of Life Care, which acts as a comprehensive manual for best practice at end of life in any care setting such as a hospital, a children’s hospice, or in the home. It covers three main stages of care: care before death, care at the time of death, and care after death. As well as going into detail about practical considerations and medical procedures surrounding end of life, it serves as a reference for the many legal issues surrounding death and gives advice on how to approach the subject of end of life with parents. It also provides helpful information on the attitudes of various religions towards, and rituals surrounding, the end of life and care of the body after death. e Transition Care Pathway provides an easy to use, clear framework to help young people, families and professionals adjust to, prepare for and move-on to adult services. It emphasises the importance of empowering young people to take control of their lives, and calls for an early collaboration of paediatric and adult services to improve transition.

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