ICPCN Strategy 2016 – 2018

The ICPCN is the only global organisation working as a network in the field of children’s palliative care and is acknowledged as the lead for children’s palliative care by the WHO and other international agencies, despite the small staff of 5 who keep it running. The success of the ICPCN is built upon the sum of its parts as it is essential that we work together and collaborate to improve children’s access to palliative care.

ICPCN focuses on five key areas:

Making use of the acronym, CARES, the work of the ICPCN is focused on the following areas:

  1. Communication
  2. Advocacy
  3. Research
  4. Education
  5. Strategic development

1. Communication

  • To establish, maintain and develop an international children’s palliative care network to enable the sharing of knowledge and experience and to support the development and growth of children’s palliative care globally, both in terms of quality and coverage of care.
  • To enable the collation and dissemination of information in accessible and appropriate formats and languages to support the development of children’s hospice and palliative care worldwide.

This is accomplished by:

  1. Providing free ICPCN membership to all who work in the field of children’s palliative care.
  2. Providing an up-to-date and well-populated website with links to news, information and resources.
  3. Providing regular news bulletins signposting new research, innovations and news in the field.
    Taking responsibility for the International Children’s edition of ehospice which provides up-to-date international children’s hospice and palliative care news via a website and free app.
  4. Issuing media releases to local and international press agencies related to events and issues aligned with children’s palliative care.

2. Advocacy

To provide a global voice for children’s hospice and palliative care and advocate for the rights of children to receive the palliative care they require.

This will be accomplished by:

  • Undertaking international awareness raising of children’s hospice and palliative care.
  • Identification of the gaps in children’s palliative care development.
  • Support for the development of lobbying and advocacy at a national level.
  • Addressing the mainstreaming of children’s palliative care within relevant international arenas.

3. Research 

To disseminate and expand where appropriate the evidence-base and educational opportunities for children’s hospice and palliative care at an international level.

This will be accomplished by:

  • Contribution to the evidence base for children’s palliative care through writing and publishing in different publications
  • The regular presentation of papers on children’s palliative care at national and international conferences around the world

4. Education

To provide relevant and appropriate education in the principles of children’s palliative care.

This will be accomplished by:

  • Provision of face-to-face training in underserved countries in partnership with national ministries of health and/or well-established healthcare organisations.
  • The provision of multi-lingual and university recognised electronic learning modules on various aspects of children’s palliative care via the ICPCN e-learning website www.elearnicpcn.org
  • Bi-annual conferences

5. Strategic development

To assist in the strategic development of children’s palliative care in countries where a need for the introduction of children’s palliative care has been recognised and identified. We choose to work in countries where there is the necessary infrastructure to support the foundational work that we undertake, such as Palliative Care Associations with a proven commitment to providing services to children.

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