Dear Pediatric Palliative Team Member:
Thank you for the ways you are caring for children and family caregivers in this unprecedented time. We recognized that the COVID-19 pandemic has impacted interdisciplinary pediatric palliative care team structures, care delivery, and communication formats in profound ways. To better understand the ways that the pandemic has changed pediatric palliative care globally, please invest 20-minutes of your valued time to complete this Global PANDEMIC (Palliative Assessment of Needed DEvelopments and Modifications In the Era of Coronavirus) Survey. ICPCN are working with St Jude’s on this study.
The survey was reviewed by the St Jude IRB on 18 June 2020 and determined to be exempt.
Please do take the time to complete the survey and we wish you peace, health, wellness, and courage.