This workshop was held to introduce participants to the principles and practices of children’s palliative care and its integration into the management of children with cancer. A range of topics were discussed including pain assessment and management, communication, managing other symptoms, advanced care planning and end-of-life care, the nurses role and resilience.
Experienced facilitators from the International Children’s Palliative Care Network (ICPCN), the Palliative care Education and Research Consortium (PcERC) and World Child Cancer (WCC) led the interactive day of sessions and provided opportunities for discussion and sharing of experiences.
This workshop was made possible through funding from the Burdett Trust for Nurses through a grant to the Global Health Academy at the University of Edinburgh.
| 1. |
The principles of children’s palliative care and integration into the management of children with cancer |
Prof Julia Downing, International Children’s Palliative Care Network (ICPCN) and the Palliative care Education and Research Consortium (PcERC) | 1. Principles of CPC |
| 2. | Pain assessment and management in children with cancer | Liz Nabirye, Palliative Care Education and Research Consortium (PcERC) | 2. Pain management in Children |
| 3. | Communicating with children in palliative care | Florence Nalutaaya, Palliative care Education and Research Consortium (PcERC) | 3. Communicating with Children |
| 4. | Communicating diagnosis and prognosis with children and their parents | Alex Daniels, International Children’s Palliative Care Network (ICPCN) | 4. Communicating Diagnosis and prognosis |
| 5. | Managing symptoms other than pain | Florence Nalutaaya, Palliative care Education and Research Consortium (PcERC) | 5. Management of Symptoms |
| 6. | Advanced care planning and end-of-life care | Liz Nabirye, Palliative Care Education and Research Consortium (PcERC) | 6. End of life care and Advanced care plan |
| 7. | The nurses’ role in children’s palliative care | Alex Daniels, International Children’s Palliative Care Network (ICPCN) | 7. Nurses Role |
| 8. | Resilience | Megan Cruise, World Child Cancer | 8. Building Resilience Palliative Care March 2022 |
Some of the resources mentioned during the workshop can be found here:
- A really practical handbook of children’s palliative care
- Children’s palliative care in Africa
- Communication with children and adolescents about the diagnosis of their own life-threatening condition
- Communication with children and adolescents about the diagnosis of a life-threatening condition in their parent
- A proposed global framework for paediatric communication research
- ICPCN’s e-learning programme
Children’s Palliative Care: An International Case-Based Manual can be purchased here.
